Only Russian Survivor of ADA-TK2N, Dies Amid Medication Dispute
Friday, 6 June 2025 () Tatyana Drozdova, who suffered from rare genetic disease ADA-TK2N, died in Novosibirsk. She was 23. The woman had been in a legal battle with the regional Health Ministry over access to an imported drug costing an astronomical amount of 50 million rubles (about $632,000), her mother Alyona Drozdova said, the Komsomolskaya Pravda newspaper said. The court had ordered the Novosibirsk Health Ministry to provide the drug. The decision had been upheld after all appeals by November 2024. However, Tatyana never received the medication.
Friday, 6 June 2025 ()
